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Very complex disease, that destroy the chromisomes and deteriates the body. Rachel first went blind, then as life went on her body functions stopped working correctly. It attacks the ammune system also... When she would get sick it was twice as bad on her. She was supposed to live to be 12 to 14 years old, but managed to make it to 23 in september this year! Battens is a very rare disease, with no medications to correct it.
My hubby's name is Ron and my nieces name is Rachel. Two very inspirational people. Ron and I had almost 26 years together, we were soulmates, but I would not want to see him suffer any more than he already did! He is at oeace now and I accept that, as is Rachel at peace and also in God's arms. Thank you for you prayers!
Please pray for my sister and her family, as they just lost thier 23 year old daughter to Battens Disease. She was an ispiration to all that knew her. She has joined my husband that recently passes on as well in the hands of God. What a wonderful thing it must be to walk and run again with no pain! I would also like to say Thank You to all our service men and women for all they are doing across the world. God be with them all!
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